Family struggles to access therapy for son with cerebral palsy

Ruth O’Boyle’s son Peadar was born very early and faced serious health challenges from the start. He had a bleed on the brain, which raised concerns he might have cerebral palsy (CP). Peadar was diagnosed shortly after leaving the hospital. The family was connected with their local children’s disability network team. However, the family has struggled to get the therapy sessions Peadar needs. They have not seen an occupational therapist since December 2022 and have had very few sessions of speech and language therapy. Recently, they waited four months for a short physiotherapy appointment to trial a new walker for Peadar. Ms. O’Boyle emphasized that this delay is significant for a three-year-old. Today is Cerebral Palsy Awareness Day. The Cerebral Palsy Foundation is highlighting the difficulties many families face in accessing services. A recent survey showed that 97% of people with CP or their caregivers are concerned about getting regular treatment. Many believe there is a strong need to reduce waiting times for appointments. Denise McDonald, a pediatrician, stated that early intervention is critical for children with CP to improve their chances of better function. She noted that waiting too long for treatment could delay progress. The HSE was contacted regarding the availability of these services. Ruth and Aidan O’Boyle have decided to pay for private therapy to help Peadar meet his needs. While they understand they are fortunate to do this, it has still put a financial burden on them. Despite initial concerns that Peadar would have many disabilities, he is now talking, and although he is not yet walking independently, he is making progress.