Raising a child with Down syndrome poses significant challenges

Raising a child with Down syndrome in India presents many challenges. Each year, about 23,000 to 29,000 children with this condition are born. Sadly, only 44% survive, according to recent studies. Down syndrome is caused by an extra copy of chromosome 21 and is the most common chromosomal disorder in the country. It can affect growth, learning, and can lead to various health problems. Children with Down syndrome often face special health concerns, including congenital heart defects. Nearly 60% of these children have heart conditions that may require surgery early in life. Timely diagnosis is critical to prevent serious complications. In addition to physical health issues, children with Down syndrome may have neurological challenges. Research shows that therapies like speech and occupational therapy can significantly improve their cognitive skills. Early intervention can help children develop better and lead more independent lives. Mental health is another concern. Many children experience psychiatric disorders, such as ADHD and anxiety. This can increase stress for families, but psychiatric care can help improve the emotional well-being of both parents and children. Sleep quality is also important for cognitive development. Many children with Down syndrome suffer from sleep apnea, affecting their sleep patterns. Experts recommend fixed bedtime routines to help improve sleep quality. Acceptance and inclusion are key for these children. Parents often find it hard to access schools and therapy centers that accommodate their needs. Experts believe that schools should offer modified curriculums to help children learn alongside their peers. Despite the challenges, research into treatments, including stem cell therapy, offers hope for better outcomes as interest grows in improving care for children with Down syndrome.