Ulster University launches research on Down's syndrome support

Actor Dr. James Martin MBE has launched a significant research project about Down's syndrome at Ulster University. The project, named "My Life with Down Syndrome," aims to explore the lives of individuals with Down's syndrome from birth to adulthood. During the launch, Martin emphasized the importance of being oneself and pursuing dreams. James Martin shared his personal connection to the cause, mentioning his friends who have Down's syndrome. He highlighted the need for better support and understanding of their life experiences. He also pointed out that during tough times like the COVID-19 pandemic, support from charities was crucial for people with disabilities. The research will track the health and wellbeing of over 1,450 individuals with Down's syndrome born in Northern Ireland between 1990 and 2023. Professor Frank Casey, who leads the project, noted a need for better prenatal detection and improved coordination among care services. The study will seek to enhance educational and job opportunities for those with the condition. Ivan Martin, James's father and a broadcaster, reflected on the challenges faced when his son was born 33 years ago. He emphasized the importance of allowing children to pursue their interests and activities. James tried several sports but found his passion in acting. James's mother, Professor Suzanne Martin, shared the difficulties their family faced, especially during transitions in schooling and care. She expressed gratitude for the changes brought about by the 1987 Education Act, which allowed children with disabilities to attend school. She noted the positive outcomes for many of James's friends, who are now in jobs and some living independently.